Quality Improvement in Enhancing the System of Services for Children and Youth with Epilepsy

Dates: 2012-2013

Geographic Scope: Nationwide

Client(s): HRSA - Maternal and Child Health Bureau

Services: Health Care & Public Health Planning, Training & Technical Assistance, Applied Research & Evaluation

Technical Expertise: Maternal and Child Health, State and Local Public Health


According to the Epilepsy Foundation of America, approximately 300,000 children (under 14 years of age) have epilepsy. JSI was funded by HRSA's Maternal and Child Health Bureau (MCHB) to assist Innovative Strategies and Promising Practices grantees to improve the system of care in medically underserved and rural areas for children and youth with epilepsy. The initiative explored mechanisms to spread improvement of the quality of services for children and youth with epilepsy in the medical home and to strengthen the co-management relationship between the medical home and the specialty network.

The project aims were to: 1) Create a three-session learning collaborative for grantees; 2) Analyze the results of the evaluation compiled from prior learning collaboratives and design a strategy to incorporate continuous learning improvement; 3) Conduct a comprehensive analysis of the learning collaborative.

This initiative applied a learning collaborative approach to teach quality improvement strategies and techniques to grantee teams that included Title V programs, providers, families/youth and other stakeholders. Improvements targeted the six MCHB performance areas including medical home, coordinated systems of care, and adequate support services by applying innovative strategies for improving systems in a range of areas, such as mental health; telehealth; provider education/training; and care coordination. The learning collaborative evaluation examined motivation as well as barriers and facilitators to participation; key skills, knowledge, and perspectives gained; changes resulting from involvement; suggestions for improvement; and sustainability of implemented activities and models. A toolkit for Enhancing Systems of Care for Children and Youth with Epilepsy was produced that incorporates methods, materials and resources developed and implemented by grantees through the course of the project, with a particular focus on engaging families in the improvement process.

 

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